Schrödinger's Cough

They say that absence makes the heart grow fonder so I have no doubt that over the last three months, although you have all been preoccupied with steering your loved ones away from the evils of extremism, trying to combat the attritional effects of ever-increasing austerity and washing your smalls with the cheapest but most eco-friendly washing powder to be found at Lidl you are now - upon discovering a new blog post from yours truly after a break of a quarter of a year - overcome with emotion so deep and so raw that you can barely read these words in front of you as the realization of how much you have missed me finally hits home.

Well, let it wash over you in great waves. Don't try and fight it. Let the deluge fill your teacup to the brim and then slowly but surely raise sea levels the world over.

For my part I am trying to think of a suitable celebrity couple with which to best represent my odd relationship with you all. Thelma & Louise? Not quite. Batman & Robin? Sorry, you don't have the legs for it. Closest I can find is Freddy and Stuart from Vicious. Of course I am Freddy, ever demanding and not really able to express the slight fondness I feel for you all though perfectly able to articulate my sneering contempt for any effort on your part to please me whilst you potter about the house (paid for by me) catering to my every whim and trying to kid yourself that you are utterly indispensable.

Yes. We are all entangled in a slightly clichéd gay relationship that exists only on the television.

But on the bright side, we can now get married.

"What have I been doing?" You clamour. "Where have I been?" Unlike the pussycat from childhood rhyme going to London and visiting the Queen has not featured on my itinerary at all.

Unfortunately, my father dying, trying to sort out stuff from Karen's mum's will, and trying to keep heart, body and soul together have featured large. And none of it has reached a stage that anybody could term "resolved".

As an aside - and thankfully it is only an aside - I had my own health scare last week when a persistent cough drove me to the doctors. Given my father's demise through lung cancer my doctor thought it best that I go for a chest X-ray immediately - to make sure there was "nothing nasty" causing me grief. Up until then I had gone for 8 weeks, coughing away without a second thought. As soon as the X-ray was booked in (and I realised my doctor was taking it all rather seriously) my mind kind of imploded with all of the unwelcome possibilities that exist in the world of disease and medicine. I had to wait a week for my results with my former casual cough now being the harbinger of chemotherapy at worst and the inaugurator of the iron lung at best.

It's appalling how one's mind can torment you and torture you. And it is totally self-defeating. Especially when you consider how some theorists posit the idea that thought and observation inform and create reality. As I waited for the 7 days to elapse before I could ring in for my results I found myself thinking of Schrödinger's cat quite often and realized that, in this uncertain interim, according to the laws of the Quantum universe, I both had and didn't have cancer at the same time. The answer lay in a closed box and would not settle into one of the two states until I opened it up and had a good look at it. Until then, to some degree, my behaviour in the universe would determine my fate.

Some believe that to get what we want from life we have to behave as if we already have it... and then the universe furnishes it to us accordingly. If we fill our hearts with yearning and desires that seem hopeless then the universe merely gifts us more of the same. The key is to live your life as if your desires are already met.

I have no idea whether that is true or not. I do not have empirical evidence that it works.

All I know is my results were clear and the doctor has put my cough down to either the onset of asthma or hay fever and since I have dispensed with subconscious fears about the Big C my cough seems to be getting better on its own.

And I am back. Back amongst you all.

So all is well that hasn't ended. See? Life can still be good.

Now put the kettle on and stop your embarrassingly high-pitched whimpering.

To Wee Or Not To Wee

Those of you who have foolishly connected to me via Facebook will already know of the great urinary cessation that I suffered yesterday on what has now become known as Bladderless Friday. But for those of you who have preferred to keep me at arms distance (i.e. occasional readers of this blog) let me fill you in.

I'm currently suffering a nasty bout of sciatica. I won't harp on about the pain (but if Job has sciatica then he'd really have something to moan about) but it was enough to drive me to the doc's on Tuesday and in some desperation demand some release.

I was furnished with a prescription for Zapain. A drug that sounds like it was lifted from the 1960's Batman TV series. I don't as a rule take pain killers (preferring instead to be vocally miserable) but this time it really was a case of needs must.

What I hadn't taken into account was my body's now apparent intolerance to Zapain. Initially it was fine. I could cope with the woolly-headedness and the light-headedness because I was at work and didn't care and, on the plus side, the incessant, crippling agony of screeching back and leg muscles finally began to dull down to an almost forgettable background hum.

What I failed to acknowledge to myself was that gradually my once strong and regular flow of urine (no, I am not talking about this blog but real urine) was beginning to dry up. To reduce to a tormentative trickle.

At first I thought it was my imagination. Thought it was psychosomatic. But as the days wore on it began to dawn on me that not all was well in the State of Denmark. Going for a pee was becoming harder and harder to accomplish. I was having to concentrate on relaxing and 'letting go' before anything would happen. I'd have to lean forwards over the toilet as if to relieve pressure elsewhere - tip the kettle over, so to speak - and let a desultory tickle dribble forth.

By Thursday night it was worse and I finally admitted to myself that I needed medical assistance. Going for a wee now required a gargantuan effort of will - all my focus drilled down onto the seemingly impossible task of relaxing my bladder. It gave me heart palpitations, it gave me the sweats, I thought I was going to pass out. And where once there had been a torrent there was now not enough to turn the smallest of Archimedes' Screws. Think of a hosepipe with the tap turned off. You know there is water in the pipe but as you lift up the hose only a sad, mean trickle plashes forth.

By Friday morning I was ashen and fearing the worst. The first thing a guy thinks of when he has trouble with his water-works is prostate. Or worse. In practical terms I was thinking catheters and the doctor's fingers shoved up my bum... neither of which were enticing me to the doctors but the thought of spending the day in bottled up agony didn't appeal to me either.

My good lady wife - as shaky as I - drove me to the doctors as soon as we got an emergency appointment. I was by this point fearing it would be a hospital job. Either that or death by drowning.

As it turned out nothing so drastic. My doctor (not the one who proscribed me the Zapain I might add) might have the bedside manner of a Findus frozen fish-finger but he knows his stuff. He quickly ascertained that Zapain was not doing me any good at all and had in fact set my bowels rock-solid. To the point where they were inhibiting my bladder from its usual functions. No more Zapain. Not now, not ever. Instead no more than 4 paracetamol a day, lily-livered, flower of ill health that I was. As for peeing... I needed to drink lots and lots of water and take some laxatives. He felt sure that as soon as the bowel was released the bladder would soon follow.

I must admit I was sceptical. The thought of chucking loads of water down my throat and becoming the physical embodiment of the Elan Valley Dam didn't seem to me to be the best course of action but I decided to trust my doc and I was heartily glad I did.

Literally within an hour of the softening effects of the laxative I'd managed to induce a small waterfall - with effort. A little while later the Dam Buster's Theme Tune could be heard blasting from my bum cheeks as several tonnes of blackened concrete dropped away revealing blue skies and clear air and an unfettered passage to the west.

Since that wonderful hour my bladder's pouring forth has become easier and easier - though I still feel tender and sore and rather battered. And of course the back pain has started again. Really, 4 paracetamol are just not going to cut it.

But I'd choose the rack over the plug any day of the week...

Never Event

A Never Event, for those of you in the dark about such things, is a quasi-medical term to describe an unfortunate incident whereby a top surgeon accidentally leaves his Rolex inside a patient’s abdomen after performing some kind of life saving operation. It’s kind of similar to the aeronautical term, Near Miss. Except where Near Miss describes something that is actually a miss (as opposed to the more factually correct Near Hit), Never Event describes an unfortunate event that did actually occur. But never should have.

I’m not sure what the official statistics are but it’s something like for every 100,000 operations in the UK, 750 odd people will wake up after the anaesthetic has worn off to find they have been stolen by rogue gangs of Polish scrap metal dealers intent on liberating the MRI scanner that has accidentally been left inside their colon so they can get their hands on the copper wiring.

In percentage terms you have a 4/1000ths of a percent chance of somnambulistically shoplifting a pair of titanium forceps during a UK hospital operation and then paying for it with months of agonizing pain, another operation to remove it and another 4/1000ths of a percent chance that this time all they’ll leave in you is a cheese straw or a rolled up copy of Heat magazine.

Talk about an embarrassing hernia.

Apparently the bigwig experts are quick to point out that statistically this is bloody good and just shows what a bang-up operation (excuse the pun) the NHS really is. I don’t doubt it at all.

But for the unlucky 750 who inexplicably trigger off airport security scanners even when they’ve stripped down to their skimpies it is cause for little consolation.

And, at the end of the day, it is needless stupidity.

I’m sure that with the simple application of real-world logic Never Events can be eradicated completely from the NHS statistic sheets. And I have the answer.

It hit me the other day when I was in the bank and needed to fill out a deposit form. I didn’t have a pen on me but I knew the bank would have a couple lying around for me to use. Lying around but so cunningly contrived that they would be impossible for me to accidentally steal - either deliberately or in a fit of medical absentmindedness.

Because the bloody things are attached to the walls and surfaces with one of those metallic strings that appear to be made of hundreds of linked ball bearings.

This is what the NHS needs. Every piece of surgical equipment from endoscopes to the smallest laser scalpel needs to be attached to a bit of metallic ball bearing string which is in turn anchored to the hospital infrastructure. Hey presto, no hospital would ever misplace an item of beneficial butchery ever again.

And even if a speculum did end up accidentally deposited inside an OAP’s orifice, just attempting to wheel them out of the operating theatre and back to their ward would soon cause the problem to get flagged up pretty sharpish – especially if surgeons are suddenly garrotting themselves on the tautened string that is now stretched across the entire length of the theatre.

There. I declare operation Never Event a complete 100% success.

Sew him up, nurse, and let’s head down to the pub.

Oh bugger. Has anybody seen my watch?

Rattletrap

What I know about cars can be restricted to three spheres of knowledge:

1) How many wheels a car has.
2) What colour a particular car happens to be (provided I can see it, of course – I don’t do telepathy or foretelling).
3) What the purpose of the airbag and the seatbelt is.

Other than that, talk of engine size, fuel mix and torque ratios means absolutely nothing to me (oh Vienna). And I am not, in truth, interested in finding out. A car is a car is a car.

But today my wife and I have bought a new car. A new second. A Peugeot 206.

Our last car was a Peugeot 106 so I am assuming from this that our new car is 100% bigger and 100% faster but I might be wrong about this.

Our old car has served us well. It was 7 years old when we bought it and has lasted another 7 to this present moment in time. It has taken us to Wales and back numerous times. It has taken us to Legoland Windsor no less than 5 times. It brought Tom from the hospital to our home when he was a mere few days old.

It has taken me to work when I didn’t want to go. Picked me up in the rain when passing. Taken rubbish to the dump. Taken us to the cinema, shopping, friend’s houses and, all in all, assisted us in various errands.

But our recent holiday has killed it.

Barely half an hour into the outward journey the trim on the right side fell off. On the second day the hand-brake snapped and we had to call out the AA. On Friday 10th, in the depth of Cheddar Gorge, the exhaust – much loosened by a malicious branch a few days earlier – virtually fell off. We had to get it stapled back on by a kindly Cheddar mechanic (no cheesy jokes please) and avail ourselves of a Kwik-Fit fitter in Stroud on our homeward journey to get a new exhaust fitted.

A galling expense when the plan had always been to trade the old girl in for a new one in September anyway (or rather, sell her for scrap – but we never said that out loud lest we hurt her feelings).

So. We decided to listen to the omens. To obey them. September may be a month too far. The old girl might well expire before we get a chance to put a bullet through her crust.

And so in a whirlwind of activity that saw us purchase the current copy of Autotrader and thumb tenderly through its Top Gear-esque innards we had a new prospective car lined up in a matter of days.

We went. We saw. We test drove. We liked.

Today we paid up and drove home our new wheels leaving our old girl on the forecourt awaiting her last journey (to the knackers’ yard). We have opened every compartment, pulled up every seat. We have reclaimed lost Pokémon cards and bits of Lego that have probably not seen the light of day since Christmas 2006. The bits of crisp and mouldy tuna sandwiches will be our gifts to the scrap dealer and our fragrant offering to the god of cars.

I pray he takes our old girl to his bosom and gives her long and straight celestial roads to travel during her journey through the afterlife.

I don’t know much about cars...

...but I know we loved and appreciated our old 106 very much.

Goodbye, girl.

Compensation With Menaces

I've had two now.

Two text messages on my phone advising me that I am entitled to a huge wodge of cash for the accident that I just had.

The first time I was at work and wondered if it just was a veiled threat from a work colleague. Yeah, that's right Blakey, you're gonna have an accident real soon, something nasty and anally invasive with a museum artefact - probably that South Sea Island carved spear you admire so much or the narwhal tusk. You're gonna get it. Right up to the hilt. And then - ultimate insult - we're gonna offer you a measly £325 in compensation.

Because that's all the first text offered me.

£325.

Honestly. It's not worth getting an in-growing toenail for £325.

So I deleted the text. I binned it. I ignored it.

But a second one came today whilst in the car, driving back home from town. £3250 this time.

They've added a nought.

The threat has plainly increased exponentially. We're not talking about mere impalement now. We're possibly talking the loss of a limb. Maybe two. They may even throw in the loss of a testicle just to drive their point home.

They're out to get me and I don't know who it is.

I've a list of suspects as long as the staff list at work (funny that).

I'm unsure of how to play it. I mean, do I hold out for 6 figures but accept that this may mean lifelong dialysis and a Stephen Hawking voice box? Wheelchair access in the cinema?

They may even blind me, for God's sake. The Archers. Radio 4. The shipping forecast. Shit. What do I do?

I shouldn't have deleted that first text.

Maybe I could strike a deal? Accept their first offer. I mean, £325 ain't bad, is it? It's a caravan holiday in Cleethorpes. The weather might be nice that week. The kids love ice cream by the seaside. And I could get used to never sitting down again. There'd be an iPhone app for that surely?

Oh God! What do I do?

Shit. My phone is beeping again. It's another text...!

Oh God!

One For Sorrow

It’s not a common occurrence for me to feel like Rolf Harris (even when I am humming-and-harring along with my wobble board) but this week I felt like I’d stepped into the old man’s Blundstone boots good and proper.

A member of the Great British public, always so ready to immerse themselves full-bodiedly into the foaming waters of sentimentality, came rushing into my workplace on Wednesday to report an injured magpie lying in the park outside. Could we ring the RSPCA because they didn’t have a phone on them?

We’re not hard-hearted psychopaths here where I work (*cough*) but even the most soft hearted philanthropist among us rolled his eyes (read that as: I rolled my eyes) because inevitably this would mean us chasing our tails with the RSPCA recorded messaged, fully automated, call centred screening device. Or, “sod off and take it to the vets” as it is known for short.

Now, I’m not having a go at the RSPCA here. They do a fab job and they’re one of the jewels in the British crown. But from past experience I know that they are always heavily subscribed and naturally have to prioritise their cases. An injured magpie was not going to take priority over Mrs Brady’s Pekingese that had somehow found itself the prize fighter in a badger baiting ring. To a lot of people – not me, I hasten to add – magpies are seen as vermin.

Personally I think they are wonderfully majestic members of the crow family and I have a soft spot for them.

Which is probably what motivated me to dismiss my initial objections and get involved with trying to rescue Albert (as I secretly christened him) in the first place.

Albert, when I went out to locate him was in a very bad way. Another magpie was pecking at his head (I’m pretty sure this was not a form of CPR) and was trying to flap his attacker way rather pathetically. In fact, I’m not even sure that Albert was aware of what he was doing – the movement could simply have been an automatic response at the motor neurone level. Poor Albert’s head was pecked clean of feathers, bloodied and I couldn’t really discern where his eyes were.

In true hospital TV drama parlance: I didn’t think he was going to make it.

Nevertheless, I put him gently in a box and a colleague persevered with the RSPCA’s telephone version of musical chairs. Eventually, when we got through, the verdict was what we’d expected. No free operatives in the area, please take Albert to the local vets.

We rang the vets. They agreed to take him, though said the RSPCA was naughty to pass the buck onto them.

Whatever. Neither I nor Albert cared. He was doing nothing more than breathing and I figured every second lost was less chance of Albert being able to find his Victoria again.

I took him straight round to the vets. The vet did actually apologize – apparently she’d given me the wrong information. Vets are meant to take wildlife; but they don’t get paid for it.

Whilst I felt sorry for the vets, I felt more sorry for Albert. I could feel his life ebbing away inside the box.

The vet had a quick look at Albert and her diagnosis was: “Oh he is poorly, isn’t he?” She then took custody, thanked me for bringing him in and said she’d “do the deed”.

From this I assumed that full CPR and an iron-lung were not on the cards for Albert. And after many dedicated years of service to his country too!

I left the vets feeling oddly flat. Kind of in limbo. I felt like I should have said goodbye. Or offered to give Albert a decent burial. A horse drawn carriage and rose petals on the roads.

Our association had been all too brief.

So.

Now I know how both Queen Victoria and Rolf Harris feel.

It’s an odd feeling. One can’t quite see what it is yet.

Now We Are 5

The letter from the local Funeral Services came last Wednesday. Out of the blue. Without warning. I think Karen and I reacted pretty much the same. Shock. An initial inability to process the information contained within.

It's been 5 years since we lost the baby.

Even now we are no wiser as to why or what happened. The post mortem could find nothing wrong at all. His death at 20 weeks was simply put down to unknown causes. It's at that point that you realize that, despite the huge advances made in medical knowledge, the biological act of bringing a child into the world is a patchwork of unknowns and unexplained. The doctors and nurses, the scientists don't have all the answers. Things happen and they are at a loss to prevent, interfere or in anyway explain them.

Life is a chancy thing.

At the time the emotional impact was something like a world destroying meteorite. Karen and I were numb. Our emotional atmosphere flattened out under the weight of this colossal rock of misery that the universe had dropped onto us. Our time in the hospital was a weird blur of camaraderie and fear.

At 20 weeks Karen had no choice but to go through an induced labour. It was both smooth and horrific. And unutterably sad.

Even now I can't go into too much detail about the process. Only that my biggest regret was not looking onto the face of my son because I was too scared about what I might see; what condition he was in. Karen felt the same. It was too much to bear. We were too scared. Our emotions already pulled too tight to cope with being loaded with another tonne of grief.

We weren't able to take in all that the nurses said. I can remember they gave us the option of sending the foetus away for post morten to try and establish the cause of death. I remember this because I still have my half of the form that I had to fill in. We agreed to it. It seemed a good idea. It was a good idea. To try and rule out any congenital problems that might cause any future miscarriages. As I said the results proved nothing either way.

They may have offered us counselling. I can't remember. All I know is there was an implication that once the lab had finished with the post mortem they would dispose of the remains respectfully. The nurses may have given us more information about this; I don't know - my mind is a blur so I'm reluctant to throw blame about here.

So Karen and I left the hospital the next day carrying only our loss. We laid some flowers in a place that is special to us and dealt with our grief. Life was kind. We conceived Tom a couple of years later and now have a very rumbustious little boy on our hands to go with an even more rumbustious 9 year old.

And then the letter from the Funeral Services arrived last week. Would we like to collect the cremated remains of our baby? Or would we like them to hang onto them for a while longer or scatter them for us? All very respectful but a bolt from the blue nonetheless.

We had no idea our son's ashes were lying in an office storeroom somewhere a mere 10 minute's car drive away. No idea at all.

Karen and I didn't have to consider a response. We picked up our son's ashes a couple of days ago. They came in a box so tiny it was obscured by the formal letter that came with it. That was something of a body shock. Even smaller still is the little bag of ash contained within the box. Tiny. So tiny. The box is all of the weight.

Karen and I have decided to buy a tree that we can keep in a beautiful pot in the garden. We shall place the ashes there and keep him with us.

It is good and right to have him home.

Ours.

Us.

Family.

Victory Over Christmas

It's not like I have been deliberately at war with Christmas. Far from it. I didn't go out of my way to pick a fight or irritate it. I didn't shag its girlfriend behind its back or fence its entire DVD collection to buy drugs.

But the previous 2 Christmases have been fraught to say the least. Difficult. Compromised.

The first Christmas Tom had his MMR vaccination and the good nurse managed to time his appointment so that he had a reaction to it on Christmas Eve and Christmas Day. He was grouchy and grotty and we got very little sleep. Christmas Day 2008 was, therefore, an effort and exhausting. Frustrating even. Then Christmas Day 2009 Tom came down with some horrible gastro-bug which affected us all in one way or another and kept him restless during Christmas Eve night so that we spent much of Christmas Day dragging ourselves around like zombies... frustrating yet again.

I actually got to the point where I wondered if we would ever experience an illness free Christmas. I felt - in the dark corner of my mind where ridiculous thoughts are wont to multiply - that we'd been somehow cursed. Bad Christmas ju-ju. A Santa hex.

So I approached this Christmas with an understandable amount of caution. Especially given Karen's recent hospitalization and all the bugs and noroviruses doing the rounds at the moment. I mean we've even got bloody swine flu at the local hospital. Talk about being under siege.

But.

It's been OK. It's been fine. I think Christmas and I may have made up (though I'm saying this quietly in case it changes its mind). It liked the aftershave I got it and, well, I made a complimentary comment about the socks it had bought me. Tom's been fine. Ben's been fine. Karen and I have been shattered but that's pretty much normal.

The house is awash with DVDs, books, Lego and a Kindle which some fabulous husband bought for his good-lady-wife this year. What it hasn't been awash with is poo or vomit or copious amounts of mucus.

And please, please, please, long may that continue. 'Cos if you're listening, Christmas, it's like John Lennon once sang: war is over.

Here's to a peaceful and healthy New Year.

Siege Mentality

The dust is being shaken from the ceiling beams here at Blake Towers. A battering ram is attempting to splinter the wood of the drawbridge whilst evil machinations are under way to circumvent my portcullis.

I’m manning the arrow slits and I have boiling oil on standby but I fear it is only a matter of time.

Outside, beyond my moat (replete with fishing gnomes and ornamental carp), is an army blacker and more perfidious than the entire horde of Mordor / Voldermort / X Factor (choose your own poison and insert it here):

Seasonal illness.

For the last 2 Christmases one or other of us has been ill. 2 years ago not only was Karen ill but the good nurses at the NHS conspired to give Tom his MMR jab at just the right date that his reaction to it would fall on Christmas Eve / Christmas Day. Thanks a bunch. And then last year Tom was ill again without any help from anybody except maybe the many agents of illness who, let’s be honest, it is difficult to avoid. I mean you might be one right now without even knowing it.

I’m desperately hoping for an illness free Christmas this year. A Christmas where the kids are happy not grumpy. A Christmas when Karen and I are not exhausted because we have not been up the night before tending to sick offspring.

But the signs are not good.

Karen was hospitalized last week and though she is back home she can still not be awarded a clean bill of health. Recovery from any illness at our age with 2 kids running amuck is necessarily slow and hampered. And then Ben was sick over the weekend. Literally sick. Vomit City. He did that typical kid thing of announcing he felt sick 3 or 4 times, wasting a good minute as he did so and then walked through the kitchen – past the sink which although not designed for such things is an ideal receptacle for one’s emerging stomach lining – and instead positioned himself over the nice white living room carpet. A Jackson Pollock ensured. He then stepped a couple of paces forward and added a side dish to the hall carpet. Two birds with one stone so to speak.

Tom thankfully has not been sick (and I am saying that quietly unless I tempt Fate) but has had a “runny bum”. This may be down to a spot of teething, the same bug that Ben may or not have or even another bug entirely. Who knows? There are so frigging many.

Now believe me. I am trying to count my blessings. Because there are many this Christmas (and indeed all the year round) who would be happy to be suffering from mere stomach bugs and colds. The odd bit of temporary vomiting would be light relief. I don’t know how good I’ve got it.

But for the last few months I feel like my household has been sucked up Doctor Who style into a time vortex and deposited in the middle of a Cholera epidemic.

I am sick of feeling sick. And sick of cleaning up sick.

All I want for Christmas and all I wish for mine and yours is good health, cheer and excellent spirit.

(Though a Lego set would be nice.)

The Weekend That Wasn't

We had a number of plans for the weekend. Nothing earth shattering or mind blowing: a little winter cleaning, a little life laundry, etc. Mainly we just wanted to get the Christmas decorations and tree up and to make an occasion of it for the kids.

Instead the weekend ended up with my youngest boy, Tom, wearing a cardboard bedpan on his head at the local hospital because to him it was not a bedpan but a cowboy hat.

How did we get there...?

Well, my wife, Karen, had been feeling rotten all last week and towards the end was too ill and too uncomfortable with stomach pain to go into work. Unfortunately there is a hell of a lot of stomach bugs going round at the moment so our local GP was not unduly concerned. By Friday, however, she'd taken a turn for the worse and the GP requested she attend the surgery before it closed for the weekend.

The last thing Karen wanted to do was get out of bed and go into the snow to be poked about by the doctor but, thank God, that is what we eventually did.

The doc wasn't happy and diagnosed, "hospital".

Now given that Karen was unable to drive because of her condition and I am unable to drive because I have never taken my test we would have been stuck indeed but instead are indebted to our neighbour and to a work friend who between them both have ferried us all around since this whole thing kicked off.

So Friday night we all - me, Karen and the boys - found ourselves stuck in A&E for 5 hours while they prodded, probed, removed blood and X-rayed Karen in their attempts to form a proper diagnosis.

None of these tests went to waste. The final diagnosis was Colitis - inflammation of the colon. And severe dehydration. Severe enough that she has still been on a drip today. Thank God we went to the doctors - I think the outcome could have been far worse if we'd delayed any longer.

So that rather changed the structure of the weekend. I've been a single parent for about 3 days (and counting) and though I am coping (i.e. the boys are wearing clean clothes, eating proper meals and going to school / nursery as usual) I am frazzled to say the least. It hasn't left much room for writing or "me time" and I deeply admire those genuine single parents who manage to balance family responsibilities with responsibilities towards the self.

Karen is recovering well. I have been to see her again today and the doctors are talking of allowing her home either tomorrow or Wednesday but she is officially signed off work until next Monday. I'm off work until Wednesday - my boss has been very understanding.

The boys are fine - the oldest, Ben, has taken refuge in his DS (a coping strategy I am sure) and the youngest, Tom, has occasional sulky moments when he grabs my face, fixes me with a hard Paddington Bear stare and demands, "where's my mummy; not fair, want mummy". I think I have impressed on him that mummy will be home soon. He's been ambivalent about his trips to the hospital - no kid likes them, let's face it - but he did enjoy playing with the bedpan (unused) and that has been the light relief for this interminably long weekend.

I am praying that normal service - on all fronts - will be resumed very shortly.

P.S. To those Bloggers and Tweeters who already knew of these events and offered their support and warm wishes - a heart felt thanks.

My 4 Year Old Daughter Is Dying From Brain Cancer Please Can You Help?

And if you’re a normal feeling, compassionate human being that’s you sucked in right there.

What do you have to do to help? Well, apparently you just have to forward a very mawkish email on to everybody in your address book. And you mustn’t break the chain. In fact you won’t because I’m going to insert a picture of a small child lying in a hospital bed with a tube coming out of their nose just to yank those heart strings of yours a little harder. If I’m being feeling really manipulative I’ll ensure the child is bald. Just to bring home their plight and add a few more unconscious associations into the mix which is currently making you feel both guilty and responsible. Cancer. Chemotherapy. Great Ormond Street.

And it’s not like I’m asking you for money. I’m just asking you to forward an email. AOL or Google or some other fantastically generous internet company will donate some money every time the email is forwarded. Because they are going to take time out from their busy schedules to track the email. Isn’t that amazing? You can save my child’s life just by forwarding this email. Just by launching another distasteful dollop of internet spam into the electronic ether and clogging up everyone else’s In-Box with another perfect example of pointless emotional blackmail.

Because if you had half a brain you would simply do an internet search on the first line of the email and be directed to one of any number of email hoax sites which would confirm that the email you have just received is the biggest load of old bollocks to hit your PC screen since you erroneously accessed The Swinging Seventies web site. It’s crap. You’ve just needlessly upset all your friends and work colleagues and proved yourself to be a chump of the highest order.

I get emails like the one described above quite regularly. I can usually smell the bullshite emanating from the first line but I always do a Google search anyway just to confirm. I have never yet received a genuine ‘you can save my child’s life by forwarding this’ email. I then reply to the sender pointing out it is a hoax and supplying a link so they can confirm it themselves.

Two things make me mad.

One is the stupidity of the person who sent the email to me in the first place but, hey, we all get caught out at one time or other, don’t we? So I’ll let that pass.

Two – the cynical, screwed up, emotionally backward, ego shrivelled little turd who spent time crafting this email in the first place and then spewing it out into the real world. What on earth do they get out of it? What possible pleasure can you glean from the thought that millions of people are going to feel upset or saddened at the fictional plight of a made-up kid lying in a non-existent hospital bed?

Because what makes me really mad is the sure fact that, the law of averages being what they are, one of the recipients of this email is going to be some poor mother or father whose kid really is in hospital fighting for their life. And this poor mother and father won’t think this email is a hoax – I doubt such a thought would even enter their head while they are holding their child’s hand through the portal of an intensive care screen. They would no doubt think: those poor parents; going through what we’re going through, we must help them. And thus they take time and emotional energy away from the plight of their genuinely ill child – time and energy they can ill afford – to forward on this selfish, nasty, emotionally stunted piece of forgery to all their friends and family, who knowing of their friend’s plight will also forward it on in their honour.

And thus the chain is established.

I’m not sure what can be done about this type of email abuse, except to voice the hope that I am not the only person in the world who is suspicious enough to check these missives out for myself before hitting the Send button. Possibly there is nothing of any real consequence that any of us can do.

Instead then, I invite you all to join with me in hoping that there is a very hot, very ferociously cruel inner circle of hell set especially aside for the people that create these emails and send them out into the world in the first place and that Old Nick receives them all as a celestial email attachment very soon.

Hey Satan – you’ve got mail!

Reveille

My grandfather died this morning. He went very suddenly in his sleep.

All things considered, not a bad way to go.

He will be missed not least for the hole in the world that he leaves behind.

Dominoes

Saturday saw my mother, me and my two sisters descend upon my grandfather’s bedside like priests come to hear the final confession. We had been summoned, all of us, by the ward sister the day before, whose urgings had persuaded my mother that her original planned visit on Monday was simply (and I quote) “too far away”. We had to come now. ASAP.

This coupled with the news that my grandfather had been prescribed morphine on Friday had us fearing the worst. I mean, what else are you to think? Morphine is a pretty hefty painkiller. They don’t administer it without good reason. Or rather, bad.

So we were all there. Awaiting the arrival of the nursing sister of the day to speak to us. Apparently (according to another communiqué from the hospital) she wanted to speak to my mother in person to explain the situation more fully.

My grandfather lay before us. White, thin, skeletal. His skin now so transparent as to be almost non-existent – it looked as if a mad calligrapher had drawn veins and arteries in bold ink on parchment. His outline was a folded clothes’ horse of stick bones and rounded corners under the bed sheets. Piteous really when I think of how he used to be: always slim and wiry but always, always so vital.

The nursing sister eventually graced us with her presence, mystified by our request to see her. It seems she had no further information to give us. My grandfather was certainly very poorly but he was comfortable and stable. No real change from how he’d been over the last 2 weeks. It seems our urgent attendance was not really required. The priest need not be called away from his lunch. The morphine too was something of a red herring. Yes, he’s been prescribed it but he has not so far been given it – because he is in no pain whatsoever and does not need it. It is there merely “in case”.

Cue wry looks from us all. It is of course nice to know that although my grandfather is still at death’s door he is not yet, as we feared, ringing the doorbell. But it is irritating in the extreme to have lived with such a black picture of his condition for the last few days when the paint, barely dry, was only as grey as it has always been.

What havoc a little misinformation can cause! If the hospital can’t get their story straight between themselves my family and I stand little chance of ever staying well informed.

The only information that we received that could be deemed in any way useful was the sister’s expert opinion that it is highly unlikely that my grandfather will ever return home again. He needs 24 hour care. If he leaves the hospital it’ll be to go to a nursing home. The thing he most wanted not to happen. Alas, he is now so far gone that I doubt he’ll even notice let alone care where he is.

So, for the first time in my life, the house of my grandparents – the home of so many happy memories for me – will be completely empty and lifeless.

This seems another small death in a long line of small deaths that are inevitably leading to a bigger.

The dominoes are toppling but at least the game is not yet over.

The D Word

Nurses, doctors, medical staff. They do a tough, backbreaking, heartbreaking job. I couldn’t do it. Not at all. And I want to make that clear because there is a part of me that is just instinctively opposed to slating anyone in the medical profession.

But I can’t deny I am becoming more and more frustrated, disappointed and just let-down with the service my family is getting from the local hospital.

My grandfather is still in hospital. All week we’ve been getting reports from the staff on his ward that he is fine, that he is stable, that he is doing well. Yesterday morning we even got a fantastic report that he was doing very well indeed and was up and chirpy.

Then yesterday afternoon, out of the blue, a consultant advised us that actually he is doing very badly and is very poorly indeed. So much so my mother is rushing down from Sheffield tomorrow to see him. Things don’t look good.

I realize people can go downhill fast – especially when they’re old – but this really sounds like there has been a case of crosswires and misinformation. I sometimes wonder if the hospital staff are even talking about the right patient when they give us information about my grandfather.

There is also a massive and often very worrying omission of facts.

My grandfather has developed Clostridium difficile (C. diff) – not for the first time I hasten to add. It seems to be as a direct result of being admitted to hospital and pumped with antibiotics. He is very poorly with it and given his frailty the hospital has few options of how to treat it. Higher dose antibiotics could have an adverse effect and surgery to fix the resultant lump in his stomach / abdomen is off the cards because it is doubtful he’d survive an operation.

As C diff is very contagious it makes visiting him difficult – I have two young children and my parents both work with food and children; we need to be careful about not carrying any infection away from the hospital. Luckily my mother had tipped me off about his C diff diagnosis before my last visit and a good job too. The staff nurse, when told who I had come to see, merely waved me to his room and didn’t check to see if I knew of his condition or make any attempt to ensure that I took adequate precautions to prevent the spread of the disease. For all she knew I was just someone off the street who had no prior knowledge of his condition whatsoever.

This lackadaisical approach appals me. Again it comes down to poor communication and a reluctance to pass on necessary information. Surely this should all be part and parcel of the care package – keeping the next of kin fully and accurately informed?

Or, with the supremacy of the internet, should I be doing my own online Google research and Wikipedia-based prognoses? Or maybe checking the hospital’s Twitter account for updates on the state of my grandfather’s health?

My grandfather is dying. I shouldn’t have to bang my head against a brick wall to maintain a link that is already fading fast of its own accord.

The Hokey Cokey

After spending much of the summer in hospital my grandfather was sent back home again about three weeks ago with a “home care package” put into place to look after him. Two healthcare visitors four times a day to get him up, clean him, feed him, put him back to bed, etc. Not ideal but as he has adamantly refused all suggestions of going into a nursing home (which I don’t blame him for) this was the only option.

The family had reservations over the proven effectiveness of this package but had to roll with it.

Some of you will be aware of the logistical nightmare that ensued just getting a hospital approved bed and a key safe installed into his home to make this package viable.

Over the last few weeks the carers and the hospital – for all they have my admiration for their hard work and dedication – have slowly driven me up the wall with their continually mounting requests for my grandfather.

I’ve had phone calls and found notes requesting a microwave, a washing machine, a new razor, new trousers and shirts, new underwear, drinks beakers with lids, plug extension cables, etc, etc...

I don’t begrudge any of these items. Plainly they are necessary to make looking after my grandfather easier and therefore to make his life more comfortable. What I do begrudge is the assumption that I can just drop everything instantly to get it all sorted out. But I shall let that go. In the bigger scheme of things it is not important.

On Wednesday I visited my grandfather at lunchtime as usual. He wasn’t right. I’ve noticed him slipping away mentally for a few months now but Wednesday was the worst I’d seen him. He was very confused and wasn’t even sure who I was when I first arrived. He also kept talking about a parade that we’d watched that very morning on a bench over the road. Well, I needn’t tell you that there is no bench over the road, there was no parade, I’d been at work all morning and my grandfather is 80% blind.

I felt a huge sadness settle over me.

Even without having worked in a nursing home for 10 years in my twenties I know this is the beginning of the end. My gran got this way just before she died 5 years ago... spending most of the time asleep the mind drifts in and out of memories and dreams and everything blurs into one long stream of semi-consciousness.

He is loosening his grip on the world one finger, one thought at a time.

I dropped off the purchases I’d made on his behalf, made a note of the new requests, made sure he was comfortable and, at the end of my lunchbreak, headed back to work. I left a note for the carers who were due to visit in a couple of hour’s time detailing my concerns at how confused he appeared to be.

At 5.45 that evening I had a call from one of the carers to say that they’d found him sprawled on the floor. In his confused state he’d tried to get up out of his chair – possibly forgetting that he can no longer walk very well – and had fallen onto the wooden surround of the fireplace and hit his head. He was now back in hospital once more. Thankfully not too badly injured – the cut to his head was very superficial. He’d been very lucky.

A flurry of contradictory phone calls then followed from the hospital and various family members. The hospital seems to be big on spreading misinformation. He was coming home. He has a urinary tract infection. He has a chest infection. He has a chest infection but the doctor isn’t aware of it. They were keeping him in. They were releasing him. They were keeping him in for observation due to irregularities in his heart scan. On and on. And around it all the hospital’s bizarre reluctance to go into too much detail or to give out too much specific information over the telephone.

What? In case Al-Qaeda are listening in and might be tempted to recruit my grandfather as a suicide bomber? He wouldn’t have the strength or the mental wherewithal to press the detonator let alone have the physical strength to walk anywhere with half a tonne of explosives weighing him down.

By Thursday morning, once the dust had settled, they were all finally singing from the same hymn sheet. They’d admitted him to a ward and are going to keep him in for “a few days”. They’re giving him antibiotics to combat his various infections (their records of which seems to be alarmingly ephemeral) and are doing their best to correct his very low potassium levels.

So he’s “safe” for a few days at least.

But to be honest I’m wondering if he’ll ever come home again. Even if his physical health ever allows it, mentally he is already in the next room.

General Hospital & Major Cock-up

I have bored memories as a young child of having to sit through General Hospital because my mother used to enjoy watching it. That and Crown Court were the bane of the afternoons in my early years. I hated them but I do recall being faintly impressed with the dynamic efficiency of the hospital as represented on television. And that impression stayed with me for a long time. I long thought that hospitals were models of precision timing and perfectly coordinated activity.

It’s so disappointing as an adult to realize that like most things in the UK they actually run like two badly oiled bricks.

My granddad has been in the local hospital for most of the summer. He had a fall. Got a chest infection and a water infection. One thing after another and it seemed unlikely he’d ever come out again.

But coming out he is. This Tuesday after lunch apparently despite being unable to walk and therefore unable to care for himself.

He does however have all his marbles and has exercised his right to be sent home. Although some of the family are against this and would rather see him shoehorned into the nearest nursing home I’m of the opinion that as an adult he has a right to make his own decisions and die where he likes. And let’s be honest; that is what this is really about. Thankfully the law is with me on this. As he is fully compos mentis it is his decision and nobody else’s.

Getting him home however is proving to be a nightmare and this is where the badly oiled bricks come into it. I was plagued by phone calls all day Friday (which marred Tom’s 2nd birthday a little). First he was being sent home Wednesday. Then Monday. Then finally Tuesday after lunch. A care package was going to be put into place. Phew – very glad to hear that. 2 care workers 4 times a day will visit him. But before all this can occur he needs to have a hospital bed installed downstairs and a key safe put into the front porch so the care workers can gain access to him as and when.

Could I let them into the house to do all this?

Yes. No problem in theory.

Except that Saturday – the day when all this was supposed to occur – came and went with no sign of the bed arriving and Age Concern who handle the key safe side of things being shut all day.

It’s now Monday and I’m at work and cannot now just drop everything at an hour’s notice (the best the hospital can give me regarding the bed installation) to disappear for God knows how long while they shove a bed into my granddad’s dining room. And then possibly have to make a second journey to the house to meet with the Age Concern handyman (who also hasn’t got back to me yet) to get the key safe installed... because to coordinate the two together into one trip is, well, like trying to drive two badly oiled bricks up a hill.

It really feels like the hospital’s left arm doesn’t know what its right arm is doing... which isn’t what you want from a place whose primary function is to coordinate care...

*Sigh*

Thank God my granddad hasn’t been booked in for a tonsillectomy and an endoscopy... or there might be some very unusual organs in a pickle jar by now.

The Troublefone

It has been a black weekend with the telephone.

Normally it sits – not exactly loved but tolerated – on a shelf in the corner of the room and disturbs us but rarely. A polite ring every Friday evening from my mother to stay in touch. The odd call from work that may elicit a sigh or two. On occasion, when the phone is being a very naughty boy, it allows call centres to sneak through and sully my family quality time. On such occasions it gets a curled lip as its reward and its receiver banged down unceremoniously into its cradle.

Bad phone. BAD phone!

This weekend though it became a true delinquent. I’ve lost count of how many times it rang and always, always, always with crap news:

My granddad had a mini collapse on Friday and has ended up in hospital with diarrhea...

A false fire alarm activation early Sunday morning saw me stuck at work from 02.30 am to 07.30 am...

We were then plagued by endless phone calls after these events from people chasing their own tails for "more up-to-date information..."

A seemingly endless klaxon of ringing.

So not a lot of sleep was had over the weekend.

I returned home Sunday morning like a zombie, in time for breakfast and to find the kids were already up and bouncing off the walls.

Trying to catch up on sleep was a joke.

Every time I tried to chill and get my head down the phone would go yet again with more updates about my granddad or work colleagues enquiring about the fire alarms.

The phone seemed to sense just when my eyes were closing and my head beginning to nod...

Ring! Ring!

Ring! Ring!

Aaaargh!

Anyway my granddad is stable and relatively OK. That’s the most important thing. He’s having various tests done this morning but is quite chatty and has some of his old feistiness back.

Which is more than can be said for me.

I feel like a wet rag tossed into an inanimate pool of pre-primordial soup. It’s not a good look.

*Sigh*

Anybody want to buy a telephone?

One careful owner. Shotgun pellets come imbedded as standard.

But For The Grace

I’ve been suffering from bear-with-a-sore-head syndrome for the last few weeks.

Not without cause I hasten to add: illness (still got a dodgy tummy), essays due in at Uni, the mad pre-Christmas rush to get loose ends tied up at work, my novel’s ground to a temporary standstill as other priorities take over, Tom has had a permanent head cold since starting at nursery which often leads to broken sleep for all of us, money worries, Christmas stress...

I believe the phrase is “at low ebb”.

But there are times when I am reminded of how damned lucky I am. My best mate’s youngest son is constantly in and out of hospital – some kind of chromosome defect has left him with poor eyesight, poor hearing, an inability to retain his balance and a host of other problems. He’s going to be in and out of hospital for the rest of his life I suspect. He’s only 5 and has already had it tougher than most.

Then there was the news item on TV this morning. Something like 10% of children in the UK are now thought to be subject to some kind of abuse – most of it carried out at home by family members.

I looked at Tom, sitting in his feeding chair, munching on a Malted Milk biscuit as yet another green line of snot wormed its way down to his biscuit encrusted top lip and I gave him a big hug. I got a “yum” back but this was probably a comment on the biscuit rather than the hug.

Life ain’t so bad.

Ashes

It’s been a very stressful couple of days. My mum’s sister – my aunt – died suddenly of septic shock / kidney failure late on Saturday night.

Although she was in hospital for another illness it wasn’t life threatening and this sudden development has taken us all by surprise. She was only 54.

Unfortunately the situation is made worse by her estrangement from much of the rest of the family, bad feeling between her and my mum and her and my granddad (her father). It’s made much worse by the fact that she was – and I hate using this term about her – an alcoholic and, like all alcoholics, abused those she thought had wronged her to her pub mates and all who would listen... the result being that we, the family, feel unpleasantly under scrutiny and a little besieged by “well meaning busy bodies” who are all intent on “having their say” or making their wishes known. It’s all been polite so far but I’m already feeling like I’m having to pour oil onto troubled waters just to maintain the fragile status quo. It almost feels like we, the family, aren’t supposed to have any rights.

To complicate things my aunt left no will – despite the urgings of many of her friends to do so – and no indication of what she wanted with regards the details of her own funeral. She seems to have accounts and investments scattered all over the place and mountains of un-filed paperwork. Sorting it all out is going to be a nightmare – the all pervading sense of estrangement makes only makes the job more difficult.

The icing on the cake – and maybe this is selfishness on my part – is that the funeral is going to be next Thursday: Tom’s first birthday, and my first reaction was a sense of disappointment that we aren’t going to be able to celebrate his first birthday in the manner that we’d originally planned. But maybe it’s fitting in a way – as we mark a death so we celebrate a life?

As for my aunt. I feel a deal of ambivalence towards her but mostly sadness. I personally got on with her ok though I was, of course, always aware of the “family war”. But that all seems so empty now. What good has it done anybody? It’s just left a load of business that can never be finished. The saddest part of all this is that my aunt chose her friends from her local pub to be her first point of contact when she was in hospital rather than a member of her own family. Therefore they were with her when she died and knew about her death many hours before we did. And we only knew about it because my mum’s cousin is a nurse at the hospital. The family, I know, feel quite offended by this snub but for my part I just think it’s deeply sad for my aunt. What a miserable state to be in. In her defence though, I doubt that my aunt had any idea that she was going to end up on her deathbed when she was first taken into hospital...

Having to visit my granddad on Sunday morning and inform him of his daughter’s death wasn’t a nice job but with my parents in Sheffield it fell to me to deliver the news. It’s not something that can be done over the phone. The grief took him hard. I was glad that I was there. What must it feel like to be burying your own child? As a parent myself I can’t even go there in my imagination...

So, folks, that’s been the last two days. Apologies for the fragmented nature of this post. My thoughts are everywhere and nowhere at the moment. The shock of the news and the shock of the practicalities are weighing me down. I don’t feel myself at all. And the road ahead feels dark.

Even God Loves A Good Brunette

I interrupt my normal television programme review service to bring you a quick update on the mother-in-law situation.

She’s still in hospital and is still receiving speech therapy. Her vocal chords and tongue are still paralysed. Other than that though she’s in fine fettle.

Fine fettle enough to be extremely rude to Karen who journeyed down to visit her on Monday. The MIL wants an MP3 player so she can while away her time in hospital listening to a choice selection from her classical music collection. Fair enough. No problem. Karen did a great deal of research over the weekend to find the player that would be most ideally suited to her requirements – both in terms of technology and ergonomics (her dexterity is still not fully restored).

However the chosen unit is £50+. Not a great deal of money to the MIL (who is, shall we say, “well off”) and not a great deal of money to Karen’s other relatives (who are the same). But it is a lot of money to us – Karen is still on maternity leave and gets a bare £100 a week and my local authority wages are... well, the basis of a tragic-comedy. Anyway, the MIL suggested we pay for it and recover the money later from one of Karen’s relatives.

Sounds simple enough except – and this will sound horrible – the chances of getting the money actually reimbursed are very slim.

Why is it that people who are rolling in dough are the ones who are most lax about paying up?

Anyway I acknowledge that all this is really just a storm in a teacup in the bigger scheme of things...

...except that when Karen tried to tell her mother how poor we are at the moment her mother (and this is quite unbelievable) put her hands over ears and refused to listen!

I was furious on Karen’s behalf when she told me later.

Such childish, selfish behaviour. It’s the type of thing our boy, Ben, does when we are trying to tell him something that he just doesn’t want to acknowledge as true. It’s acceptable behaviour for a 6 year old. But unacceptable for a 68 year old?!

It basically says: I’m not interested in your problems; they’re not important and are unworthy of my consideration. If she could have spoken I’m sure she would have shouted “Blah blah blah” over the top of what Karen was saying.

For those that may read the above and merely shrug: just imagine if someone did that to you when you were trying to express a concern or voice a legitimate opinion.

Unfortunately, this dismissal of other people’s problems is a constant MIL trait, so we can’t even comfort ourselves with the thought that this is unusual, off the wall behaviour.

And all this occurred on top of the fact that Karen had a hellish journey down to see her mother in the first place: bad weather, an accident on the M40, baby Tom not well and Karen not well herself. My constant question to myself at the moment is: why on earth do we bother?

My one consolation – and maybe this exposes a central wickedness to my personality – is the thought that maybe there is some poetic justice to the MIL’s current condition. It’s deeply ironic (and rather apt) that someone who has caused so much damage, pain and misery with her voice over the years now finds herself totally unable to use it.

Folks, great news!

There IS a God.

P.S. In case you hadn’t guessed it. Karen is a brunette...